cupcake_goth: (Leeches)
( Jul. 17th, 2012 02:27 pm)
I lost most of Saturday to some unpleasant side-effects, but managed (through the wonders of medication) to go to a low-key party to see a friend who is visiting from out of town. Sunday I did chores, chores, chores, as I needed to run many loads of laundry. (Why hello, possible allergic reaction to a new laundry detergent, GO AWAY.)

Monday I got up, had breakfast, and was applying my makeup when my body went "Nope! Hey, how about feeling like you're going to throw up! That sounds like the thing to do!" After I managed not to puke, I emailed work to let them I know I was working from home, then went and passed out for a few more hours.

Today? I had plans to go to work, but still feel woozy and not entirely with it. Working from home yet again. I really hope I can make it into the office tomorrow, as I've got a bunch of meetings.

I'm really tired of feeling unwell. Hence a whiny post.
My doctor's office called with the results of my C4a test. It came back at 4,800. Normal is 2,600. What's really important to know is that my previous numbers were 64 thousand. Hey, I guess I am an over-achiever or something. ::rolls eyes weakly::

C4a is a protein marker that shows immune system activity. The higher the number, the harder your immune system is doing. Or, as the LymeMD blog says:

"C3a and C4a (Labcorp) are products of the complement system, cleaved from C3 and C4. These proteins are mobilized by the immune system as part of its acquired and to a lesser extent innate immune responses. These proteins can attach to unwanted bacteria and target them for destruction. These tests are sensitive indicators of a busy immune system attacking unwanted proteins or germs. These markers can provide a general sense of immune activation in the face of infection or inflammation."


So, getting better. I'm taking so many antibiotics* and vitamin supplements that I'm kind of shocked I don't rattle when I move, but they are having a beneficial effect. I still want laudanum just on general principles, tho'.



*Currently 2 different abx twice a day for three days in a row. I do that for 2 weeks, have a week off, then start back up again. I'm going to be adding a third abx to this collection in the next few weeks. I AM VERY TIRED OF TAKING ANTIBIOTICS. But they're working, so it's worth it.
Right before New Year's Eve, I went to my doctor and had something like 5 or 6 tubes of blood drawn for the latest round of testing to see where I'm at with the Lyme, the CFS, the Bartonella, and all the other things I'm fighting with.

According to the email I just received from Dr. Bobbi, my liver enzymes are fine (we have to check 'em because of the ridiculous antibiotics I'm on), my CD57 numbers have gone up from 26 to 39 (tho' the benchmark for no Lyme activity is 125, and normal is 200), and the test for Bartonella came back all clear!

::throws confetti, slumps back on the couch::

We're still waiting on some other tests, and I am still doing 6 weeks of gluten-free diet (1 week down, 5 to go), but I'm slowly getting better. Which is nice to hear.
Over the past week, I have felt *wretched*. The aches, fatigue, and dizziness of the Antibiotic Cellular Death Explosion TM the Infamous BlueJay just kept going. But worse was the fact that I was horribly, horribly depressed. Crying every day, even with the way my year has been, is not normal for me. Emotionally, I felt as numb and fragile as I did in January, right after Mom passed away.

So I looked up ALL the side-effects of my new antibiotic, and oh hey! "Possible side-effects may included depression, anxiety, mood swings, insomnia, confusion, and panic" Yeah, not taking that particular antibiotic anymore.

I have a check-in with my doc today, and we'll talk about the next thing to try. I'm staying on the Rifampin, because that IS knocking down the marker numbers for the Lyme disease, and it doesn't make me crazy. Now to just wait for the remains of the Biaxin to leave my system, so I can start feeling more like myself.
cupcake_goth: (I'll come back to haunt you)
»

Ugh

( Aug. 12th, 2011 10:57 am)
(Good lord, I don't have my leech jar icon at DW. Must fix that.)

Hard Lessons I Am Learning About My Health, by Cupcake Goth:

A few days of running around (and, let's be honest, stress, because getting lasers shot into one's eye IS stressful) leaves me very, very wiped out. Add to that a new antibiotic to the handful of meds to deal with the Lyme's Disease, Epstein-Barr virus, and the (stops to think) four other co-infection things? YES, Cupcake, you are going to have days were you don't feel capable of doing anything.

I do not like this. I am learning to be better about taking care of myself, but I don't like it. I'm going to stamp my feet in annoyance, now.
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