This is a signal boost and a request for help for
ashbet, who is an utter love. X-posted from her LJ:
Direct link: https://www.gofundme.com/mghdkdtw
For anyone sharing/reading this who doesn't know me directly (I'll make it a public post) -- my daughter and I have a genetic disorder, Ehlers-Danlos Syndrome, which is painful, degenerative, and disabling.
My partner of seven years left me today.
He was laid off in October, and we are unable to afford COBRA, so we're without insurance as of January 1.
We have high prescription expenses and normally need to see specialists regularly. I was in the middle of a cardiac workup to try to get some difficult heart symptoms under control, but I won't be able to see the cardiologist again until we have insurance, or I'm able to find a housemate to assist with expenses.
My daughter and I are both on Medicare, so we can't buy insurance through the ACA exchange. Private "Medicare Part D" insurance doesn't cover the majority of our drug costs.
We had been covered through my partner's employer-provided insurance, and if he is able to find work, he is going to try to cover us again, even though we are no longer together. In the meanwhile, we're going to have high medical expenses and no real way to pay for them.
Please signal-boost, and thank you to anyone who can share this or can donate. I am incredibly thankful for the emotional support that my friends have provided, and I hope that we can get through this tenuous and frightening time with a little bit of help.
Thank you, so very much.
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Direct link: https://www.gofundme.com/mghdkdtw
For anyone sharing/reading this who doesn't know me directly (I'll make it a public post) -- my daughter and I have a genetic disorder, Ehlers-Danlos Syndrome, which is painful, degenerative, and disabling.
My partner of seven years left me today.
He was laid off in October, and we are unable to afford COBRA, so we're without insurance as of January 1.
We have high prescription expenses and normally need to see specialists regularly. I was in the middle of a cardiac workup to try to get some difficult heart symptoms under control, but I won't be able to see the cardiologist again until we have insurance, or I'm able to find a housemate to assist with expenses.
My daughter and I are both on Medicare, so we can't buy insurance through the ACA exchange. Private "Medicare Part D" insurance doesn't cover the majority of our drug costs.
We had been covered through my partner's employer-provided insurance, and if he is able to find work, he is going to try to cover us again, even though we are no longer together. In the meanwhile, we're going to have high medical expenses and no real way to pay for them.
Please signal-boost, and thank you to anyone who can share this or can donate. I am incredibly thankful for the emotional support that my friends have provided, and I hope that we can get through this tenuous and frightening time with a little bit of help.
Thank you, so very much.
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I don't know where you live, but if you have no source of income (or very low income), please do look into getting onto Medicaid immediately.
Medicaid and Medicare are not the same thing at all (I think a lot of folks get confused and assume they are), and it sounds like you probably qualify for the former with your situation as it is now. If so, the majority of your medical costs will be 100% covered, no matter what they are.
In Colorado (my state), you can apply online, and your state may have a similar process. It's definitely worth checking into.
I wish I had more to offer, but my situation right now is such that I've had no income for almost two years, and am on Medicaid myself right now.
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We're in Texas, the Land of No Social Services. The poverty line is ludicrously low, so my Social Security disability payment (SSDI, from earned income when I was working) renders me ineligible for Medicaid.
My daughter became disabled before she could work, so she may be Medicaid-eligible -- we're having an intake interview for state programs on Wednesday. (She's 23, and most programs cut off at age 18 -- but since she's "officially" disabled according to Social Security, we can get her on some waiting lists for assistance.)
She and I both do have Medicare, but it doesn't cover our prescription expenses, which are really high. The waiting list for a prescription assistance program in TX is more than a year long :/
Thanks so much for the advice, and I hope that your situation improves in the future <3
*hugs*
-- A <3
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I wish I had more to offer than useless advice.
I truly hope things get better for you and your daughter soon! *returns hugs*
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even if i am envious of your hair. *hugs and much love* :)
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i'm a registered republican. i did NOT vote for this twit. i'm also fortunate enough to have a spouse with good insurance or i'd be in the same boat as our darling girl, and *have* been in the past.
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(And if you do, please link it here? I do have a Tumblr -- also "ashbet" -- but I'm not sure how to post an embedded item like this, since GoFundMe has kind of a weird format. Thank you!!)
-- A :)
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http://gothiccharmschool.tumblr.com/post/136622677735/ashbet-direct-link