Leeches
( Jan. 26th, 2012 02:02 pm)
I'd been feeling a little under the weather lately, and last night my neck started welting up. "But but but!" I thought, "I'm following this dratted gluten-free diet to see if that helps with this very problem! It was working! What happened? Aaaaugh!"

And then I realized: I’d had sushi with tempura bits and soy sauce over the weekend, both of which sneakily contain gluten. I knew that, but thought a tiny bit of gluten wouldn't be the end of the world. But there had been Worcestershire sauce as seasoning in multiple dishes the past few days, and wouldn’t you know it, the dratted stuff has wheat in it.

A rather large oversight and label-reading fail on my part, and now I’m paying for it. Last night involved repeated applications of Aquaphor ointment on my neck, no bath (hot baths make the inflammation a lot worse ::sobs:: ), and Benadryl at bedtime.

I'm astonished that my system is that sensitive to gluten right now. But believe me, I hope that those small amounts of gluten are what triggered this, and not some other thing that my doctor and I have not yet figured out.

However, this flare-up is NOT going to stop my planned Goth Upkeep today. I'm just not going to be dying the hair at the very nape of my neck, because that is asking for trouble and I know it.
My doctor's office called with the results of my C4a test. It came back at 4,800. Normal is 2,600. What's really important to know is that my previous numbers were 64 thousand. Hey, I guess I am an over-achiever or something. ::rolls eyes weakly::

C4a is a protein marker that shows immune system activity. The higher the number, the harder your immune system is doing. Or, as the LymeMD blog says:

"C3a and C4a (Labcorp) are products of the complement system, cleaved from C3 and C4. These proteins are mobilized by the immune system as part of its acquired and to a lesser extent innate immune responses. These proteins can attach to unwanted bacteria and target them for destruction. These tests are sensitive indicators of a busy immune system attacking unwanted proteins or germs. These markers can provide a general sense of immune activation in the face of infection or inflammation."


So, getting better. I'm taking so many antibiotics* and vitamin supplements that I'm kind of shocked I don't rattle when I move, but they are having a beneficial effect. I still want laudanum just on general principles, tho'.



*Currently 2 different abx twice a day for three days in a row. I do that for 2 weeks, have a week off, then start back up again. I'm going to be adding a third abx to this collection in the next few weeks. I AM VERY TIRED OF TAKING ANTIBIOTICS. But they're working, so it's worth it.
GAF
( Jan. 20th, 2012 01:08 pm)




The remembrance altar I have set for the next few days. Flowers I saved from the ones people sent last year, a antique compact from my grandma, the key to the Haunted Mansion (my Mom’s favorite place on earth), bobbins from Mom’s sewing machine, photos of Mom and Grandma, and one of all three of us from my wedding.

I miss you, Mom and Grandma Vida.

Thank you, everyone, for helping me and Dad get through the past year.
First, some exposition. My best friend throughout my childhood, from about age 9 onwards, was a boy named Jimmy. We were both geeky kids who read waaaaay more SF, fantasy, horror, and mythology than might have been good for us. We were inseparable for about five years, and then his parents moved to Portland.

Jimmy was crap at writing letters. He'd occasionally send a card for our birthday (I'm one year older, to the day), but that was about it. But he had this pattern where every three or five years, he'd turn up out of the blue at Mom & Dad's house, and I'd get to talk to him for a few minutes.

Jimmy now teaches Irish dance, is married, and has an 8 year old daughter and a 5 year old son. He was talking to his lovely wife about how my parents had influenced his parenting style, and decided to call them.

No, he didn't know about Mom.

He talked to Dad for a bit, got my number, and called me. It turns out that he had as an equally horrible 2011; his Mom passed away in August.

We're going to be staying in touch this time. It turns out both of us are much better at answering texts than anything else, so that's what we're doing. Sometime in the next few months, we're going to arrange meeting up, so I can finally meet his wife and kids.

I missed him. I'm glad he popped back up in my life.
Yesterday I was knocked flat by ... something. A flare-up of the Lyme and its co-bugs? I don't know. I spent all of yesterday on the couch, shivering under a heavy blanket, feeling woozy, achy, and unable to think.

Today I feel slightly better. I'm not under heavy blankets right now, I'm not as woozy or achy, and I don't feel as fuzzily vacant as I did. Of course, I made my classic mistake of thinking I'M BETTER NOW, did a bunch of stuff, and then went "Oh. Whoops. Flopping on couch now." But I feel like I have enough brain to work on job-hunt emails and the novel, so it's progress of a sort.

I'm not sure what brought on this bout of sickly, because it's not like I've been doing a lot of stuff. But [personal profile] minim_calibre reminded me yesterday that hey, this is a month of really stressful emotions for me, which is probably causing this. Oh, right.

(Speaking of really stressful emotions, the off-and-on snow around here has been making me melancholy, because in the past snow meant a phone call from Mom, telling me to stop summoning the snow demons.)

What I really want right now is a butler, who will bring me tea, tasty gluten-free snacks, and perhaps laudanum. Why don't I have a butler, dammit?
Of Goth Styles And Labels.

My beta readers/sanity-check people are brilliant. BRILLIANT.

If you lovely peoples could help spread the word around the internets that there is a new post, that would be wonderful. Me, I'm going to go flop on the couch because I feel kinda wretched. And wait for the weather to make up its mind about whether we're going to get snow in my neighborhood or not.
Tags:
Right before New Year's Eve, I went to my doctor and had something like 5 or 6 tubes of blood drawn for the latest round of testing to see where I'm at with the Lyme, the CFS, the Bartonella, and all the other things I'm fighting with.

According to the email I just received from Dr. Bobbi, my liver enzymes are fine (we have to check 'em because of the ridiculous antibiotics I'm on), my CD57 numbers have gone up from 26 to 39 (tho' the benchmark for no Lyme activity is 125, and normal is 200), and the test for Bartonella came back all clear!

::throws confetti, slumps back on the couch::

We're still waiting on some other tests, and I am still doing 6 weeks of gluten-free diet (1 week down, 5 to go), but I'm slowly getting better. Which is nice to hear.
GAF
( Jan. 10th, 2012 05:35 pm)




It's been one year since I got the news that my Mom was in the ICU. I just finished burning the 2011 calendar.
Today involved a rapidly-scheduled dental appointment to get a tooth extracted. I had cracked a tooth a little over a week ago, and over the weekend finally fessed up to the Stroppy One that I probably needed to go to the dentist. He called our super-fantastic dentist this morning and got me an appointment for noon.

Everything went really smoothly*. But as I've never had a tooth extracted before, it's all kind of weird for me. I am hyper-paranoid that I will do something wrong with the aftercare; the Stroppy One is doing his best to reassure me, but part of my brain is being unreasonable. So in order to shut up that part of my brain and distract myself, I am sitting on the couch, loopy from pain meds, indulging in Labyrinth. Hi, David Bowie, hiiiiiii.



*Also, my dentist gave me my tooth. He knew I'd want to keep it. One of the many reasons Dr. Ryan is awesome.
One of the lesser-known perils of re-reading a bunch of the Vampire Chronicles books by Anne Rice: Lestat talking about his modern-day wardrobe leads one to browsing eBay and Etsy for grey velvet blazers and antique buttons. But a grey velvet blazer over a black high-collared blouse with ruffles and a black skirt with petticoats would look fabulous, you must admit.

(Yes, I’m re-reading the Vampire Chronicles, and am almost done with The Body Thief. Maybe this time I’ll actually finish reading the book about Marius, instead of giving up after three chapters. Marius is … not my favorite, no. That would be the Brat Prince himself, Lestat.)
Guys, guys! My Vampire Requiem replica skirt should be shipping out in two weeks!

::claps hands delightedly::

I'm still conflicted about brand replicas in EGL fashion. On the one hand, making copies of other people's work is dodgy at best, and artistic theft at worst. On the other hand, the big EGL brands apparently can't be bothered to make their items to fit larger sizes, which is beyond annoying. I would have to buy two of the original AatP Vampire Requiem skirts to turn them into one skirt that would fit my 33" waist. And that's supposing I had the sort of mad money to blow on something that frivolous. The skirt originally retailed for over $200, and if I've got over $400 to spend, I'm buying something custom from Kambriel, something from Fluevog, or getting a tattoo.

(Also, having seen EGL brand garments up close and in real life, you cannot convince me that the workmanship/materials are worth that high of a markup. If I ever get some fabric custom-printed via Spoonflower*, the Infamous BlueJay would be able to help me make skirts that were far better-made than the stuff I've seen from EGL brands.)

To sum up: whoo! Black Vampire Replica skirt! Soon to be mine!


* Yes, there are vague plans afoot to create my own gothy-goth prints for fabric. I just have to wait for the Stroppy One to have some free time in his schedule ...

So. Replica skirt!
A lady always carries a handkerchief.
( Jan. 3rd, 2012 02:09 pm)
On New Year's Day, I made a playlist for the upcoming year. This is not something I usually do, but I knew I needed to do.

13 songs to set the tone for 2012:

Pay Attention/In A World Of My Own - Alice In Wonderland soundtrack
Waking The Witch - Kate Bush
Defying Gravity - Wicked soundtrack
Plasticine - Placebo
Army Of Me - Bjork
Destroya - My Chemical Romance
Prodigal - Faith and the Muse
Ready To Go (Get Me Out Of My Mind) - Panic! at the Disco
Why Can't I Be You - The Cure
Stand And Deliver - Adam and the Ants
Kiss Them For Me - Siouxsie and the Banshees
Cloudbusting - Kate Bush
Supercalifragilisticexpialidocious - Mary Poppins soundtrack
cupcake goth
( Jan. 1st, 2012 10:30 pm)
I have been given an astonishing gift to start out the year. Meg Creelman (@MargretheRavn on Twitter) sent me a doll made by the incomparable Wendy Froud.

This is Little Sister:



She’s wonderful and I’m taking her presence in my life as a sign that 2012 is going to be a good year.

Happy New Year from the Vespertine Winter Ball!

Posted via LiveJournal app for iPhone.

GAF
( Dec. 31st, 2011 11:57 am)
There are a lot of year-end memes out there, and I'm not doing ANY of them. 2011 was, with no hyperbole, the worst year of my life. Death, illness, unemployment, stress, and depression were the themes.

But there were some good things about 2011, too. I was able to spend more time with my loved ones, even the ones who don't live nearby. I went to Disneyland and the Tim Burton exhibit. I made a lot of progress on the fiction project I'm working on, and my agent is excited to see it.

But on the whole? I have never been more glad to see a year end. Next week, I am burning the 2011 calendar, because I really do need to see this year go up in flames. Literally.

May 2012 be kinder to us all. Much, MUCH kinder.
After putting stale cereal and bread on the back deck for the crows, stomping back out a few minutes later to tell off the seagulls who were trying to land. While more than a dozen crows sit in the apple tree, cawing loud encouragement.

(Well, I took it as encouragement. As soon as the seagulls, affronted, took off, the crows started landing on the railing and making their "Hello!" noise.)
cupcake goth
( Dec. 19th, 2011 01:03 pm)
The (not really a problem) with Tumblr and its never-ending stream of eye candy is that it makes me think longingly of doing things that I know aren't a good idea.

For example, I really DO understand that I don't really want to shave the sides of my head and commit to teasing my hair up every day so I have a deathhawk. I don't have the correct face shape for it, my hair is too fine-textured for it to work well, and the Stroppy One would not just make That Face, but become incoherent with dismay. But that doesn't stop me from looking at all the deathrock photos that scroll across my dashboard and go "Ooooh."
cupcake goth
( Dec. 16th, 2011 05:02 pm)
Holiday baking time! With the batula that Kambriel very kindly gave me!

GAF
( Dec. 12th, 2011 04:49 pm)
So, the holiday season is going to be rough for me this year. In addition to the obvious pain of it being the first Christmas without Mom, there's the fact that things are tight this season. Plus we're not putting up the tree this year, as a decorated tree + two energetic and mischievous babycats = disaster and everything breaking. So, no tree.

But. I am doing everything I can to find my holiday cheer:

- Dad and I are going to keep our holiday tradition of the Father & Daughter shopping trip; we'll just be present-shopping for our other loved ones. (We always went shopping for Mom together, and it's been a tradition since I was five or six, I think.) It's an important thing for both of us, even if it will be emotionally-wrought for a while.

- On Saturday I went to Wight's Nursery with Thea and Eric. They are THE store of holiday decor around here, and have 31 different decorated holiday trees. Going to Wight's is kind of like mainlining Christmas decor and glitter into your brain, and going there always boosts my holiday spirit.

- Last night was the neighborhood Christmas caroling event at the park down from my house, put on by the local Salvation Army. While I DO NOT support their stance on a lot of issues (especially LGBT ones), the local group is full of nice people, and spending a cold, crisp evening singing carols (which I love) with my neighbors is fun. They make fresh donuts and hot cider, there are horse-drawn carriage rides, and the organizers are always genuinely happy to see me. One little girl looked at me (top hat, full skirts, red ringmaster jacket, stripy tights, glow-in-the-dark skeleton boots and gloves) and asked if I was from Halloweentown, which made my night.

- I spent today doing holiday baking. Two pans of marshmallows (rose and violet) are chilling in the 'fridge, there is a batch of Chex mix in the oven, and soon I will make the dough for the gingerbread bats.

So I'm slowly getting into a cheerier holiday state of mind. Soon will be the traditional watching of Nightmare Before Christmas, and the singing along to "Fairytale of New York", and those will help, too.
Apparently finding that auction for the pink silk velvet J.Peterman waistcoat has sent me on a J.Peterman kick. I've been digging out my various garments made by them and carefully, oh so carefully, altering the ones that need it. Because, for whatever reason, stuff from J.Peterman works for me.

Which leads me to the other item by them I'm hoping will turn up on eBay in my size. You see, J.Peterman once made my Perfect Jacket. Black wool, shawl collar, princess-seamed bodice, four fabric-covered buttons, and a curved, maybe 3/4 circle peplum that hit about 3"-4" above the knee in the back. (I can be ridiculously specific because my long-cherished version is sitting on Miss Lucinda the dress form right now.)

I think it was available in 1997 or 1998. I want to say it was called something like "The Ascot Jacket" or "The Ascot Suit". The catalog page showed it with a long, slightly flared matching black wool skirt, and a Serious Hat with a swooping brim and pheasant feathers. The description was the usual sort of ridiculous sell text; something about being the mystery woman at the race, how you obviously must own the winning horse, something something oh-so-dashing, dahling. (If you are at all familiar with the J.Peterman catalog, you know what I'm talking about.)

I *want* another copy of that jacket. In my current size. It was one of the most flattering garments on the planet for me, and while I have very carefully tailored my original one down, I still long for another copy. I'm going to ask the Infamous BlueJay if she can duplicate it for me (not "if" really, because I know she's capable of it, but when she may have the time to). But I still obsessively search for it.

If I thought writing the current incarnation of the J.Peterman company about this jacket would do any good, I would. But I have no idea if they keep an archive of old catalogs, let alone previous designs.
.

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